Skip to main content
Cluster counseling logo animation background

About Me

From the first attack to companion.
My story with cluster headache.

Portrait of Stefan Kohlweg

The invisible culprit

"At 18, a nightly pain attack tore me from sleep..."

The beginning of a disease that has deeply influenced my life. For five years I searched in vain for answers: doctors, dentists, endless wrong treatments. Only at 23 did a neurologist diagnose cluster headache. Finally the invisible culprit had a name.

The episodes appeared every six months, first every third, then every second – eventually every night. Sleep deprivation, social isolation and the feeling of not surviving.

In 2022 I hit rock bottom: an attack so massive that I understood the term “suicide headache”. To keep myself safe I handcuffed myself to a radiator – an experience that plunged me into despair.

The Turning Point

Yet in this moment I realized how closely pain and trauma are linked – and that finding meaning can be a powerful remedy. I decided to turn my experience into energy for others.

My journey in stages

From patient to expert. Every step has led me here.

Age 18

First symptoms

The onset during my military service. Sudden, devastating pain.

Age 18-23

The Search

Undiagnosed phase. Wrong treatments, sleep deprivation and self-help strategies.

Age 23

The Diagnosis

Finally a name: Cluster headache. The invisible became visible.

2022

The Turning Point

Extreme episode and trauma insight. The decision to turn pain into strength.

Today

MSc & Research

Degree in counseling science, building a network and specialized research on online spaces.

Profile & Expertise

Experience

  • Affected since the age of 18
  • Over 10 years of episodic experience
  • Founder of support groups

Qualifications

  • MSc Psychosocial Counseling (Sigmund Freud University Vienna)
  • Psychosocial Counselor
  • Research focus on online counseling

Focus

  • Cluster headache & relatives
  • Trauma-sensitive support
  • Resource orientation

What this means for you

I know cluster headache from two perspectives: as a sufferer and as a counselor. My research ensures that our online setting is not just functional, but optimally tailored to your needs.

Evidence-based Strategies

Against pain, sleep loss & stress. Scientifically founded and personally proven.

Communication Tools

For partnership, family & work. Making sure you are understood.

Protected Space

A virtual place that provides safety and encourages growth.

We use cookies to improve your browsing experience and perform analytics. By clicking 'Accept All', you agree to their use. More info in our Privacy Policy.